ABOUT ME
Read all about my life experiences, my 5 Rays of Sunshine, & my passions.
5 Rays of Sunshine
Literacy
Augmentative & Alternative Communication (AAC)
Advocacy
Art
Community
BOOK ME!
Book Haley’s Rays of Sunshine for your event, class, keynote, organization, and more!
Be A Part Of Haley's Rays of Sunshine Community
Hi I’m Haley Shiber
I am a young advocate, artist, entrepreneur, sought after speaker and boss lady on wheels. Born with a rare genetic neuromuscular disorder, Pontocerebellar Hypoplasia (PCH) Type 1 B, I embrace my zebra stripes daily. In my decision to maximize my quality of life, I chose to have a laryngotracheal separation or separation of my airway. I was combatting many illnesses due to my swallowing muscles being weakened due to PCH Type 1 B. This meant I would lose my vocal cords; my natural voice. At Nemours, I received this life saving surgery. I use assistive technology, a PRC-Saltillo Accent 1400, to communicate and make my voice heard!
I am so passionate about my voice and how I use it to impact the world that I founded my own small business, Haley’s Rays of Sunshine (HROS). The 5 rays of sunshine I am most passionate about are: spreading literacy to all, promoting independence through advocacy for Alternative Augmentative Communication (AAC) and many other Assistive Technologies, creating adaptive art, and being an active member in the community. I chart my own path, and so can you!
In my day to day life I rely on caregivers to support me with my medical complexities and empower me to live in my home in my community. I love creating art, exercising, staying connected through social media and texting, being a part of duo teams in 5K races, all thanks to adaptations. I can be seen exercising at the local YMCA with the Endless Possibilities in the Community program, wheeling around advocating at Legislative Hall, creating art with my friends at Art Therapy Express, reading to schools with my voice using my AAC device with the help of Kati Anderson, SLP Central Delaware Speech and Language, and meeting with many individuals, students, groups, organizations, and committees in person and virtually throughout Delaware and beyond! I embrace challenges and allow nothing to stop me. I am Fearless.